Resources for parents
CleftPALS is the Cleft Palate and Lip Society. It is a volunteer organisation working to support parents of children with a cleft condition.
Factsheet: Cleft lip and palate - The Sydney Children’s Hospital, Westmead Children’s Hospital and John Hunter Children’s Hospital.
The Children’s Hospital Westmead book Cleft Lip and Palate, a Parents’ Guide is a good resource for parents.
Information about feeding a baby with cleft lip / palate
Velocardiofacial syndrome
VCFS 22q11 Foundation - The VCFS and 22q11 Foundation supports families and persons affected by VCFS or Deletion 22q11.
Disclaimer
This webpage pertains to management of children by the John Hunter Children’s Hospital Cleft Palate Team. The resource information is aimed at qualified speech pathologists working within the geographical area of the Northern Child Health Network. It assumes a working knowledge of articulation and phonological processes in paediatric populations.